Summary (from Goodreads):
“From award-winning, New York Times bestselling author and neuroscientist Lisa Genova comes a powerful new novel that does for Huntington’s Disease what her debut Still Alice did for Alzheimer’s.
Joe O’Brien is a forty-four-year-old police officer from the Irish Catholic neighborhood of Charlestown, Massachusetts. A devoted husband, proud father of four children in their twenties, and respected officer, Joe begins experiencing bouts of disorganized thinking, uncharacteristic temper outbursts, and strange, involuntary movements. He initially attributes these episodes to the stress of his job, but as these symptoms worsen, he agrees to see a neurologist and is handed a diagnosis that will change his and his family’s lives forever: Huntington’s Disease.
Huntington’s is a lethal neurodegenerative disease with no treatment and no cure. Each of Joe’s four children has a 50 percent chance of inheriting their father’s disease, and a simple blood test can reveal their genetic fate. While watching her potential future in her father’s escalating symptoms, twenty-one-year-old daughter Katie struggles with the questions this test imposes on her young adult life. Does she want to know? What if she’s gene positive? Can she live with the constant anxiety of not knowing?
As Joe’s symptoms worsen and he’s eventually stripped of his badge and more, Joe struggles to maintain hope and a sense of purpose, while Katie and her siblings must find the courage to either live a life “at risk” or learn their fate.
Praised for writing that “explores the resilience of the human spirit” (The San Francisco Chronicle), Lisa Genova has once again delivered a novel as powerful and unforgettable as the human insights at its core.”
This is my first Lisa Genova book but it won’t be my last. I had heard a little bit about her before (I knew she had written Still Alice, which two different friends tried to get me to read) and I knew that her books are brilliant and emotionally intense.
This book is absolutely amazing. I knew a little about Huntington’s disease but not that much. That disease is absolutely wrenching and may be the actual worst way to die. And there’s no way to cure or even stop the progression of the disease. If a parent had it, there’s a 50% chance their child will. And if you have the gene, you will get it and it will kill you.
We learn more about it as Joe does. He’s a police officer and father of four (now adult) children. And as it turns out, he has Huntington’s. His children have to decide whether they’ll get tested, and those who don’t opt for the testing have to view every dropped pen as a potential early symptom of Huntington’s. Is it better to know? I don’t know what I’d decide in that situation.
I really enjoyed this book and can’t wait to read her backlist.